In 2022… (n=28)
- Number of patients taking riluzole: 1
- Number of patients taking edaravone: 0
- Number of patients on respiratory assistive device: 1
- Number of patients on PEG: 0
- Number of patients on symptomatic medications: 0
- Rehabilitation
- Physical: 100%
- Speech: 0%
- Occupational: 0%
- Proportion willing to be in clinical trial: 79%
- Proportion willing to be in included in an ALS support group: 96%
- No epidemiological study
- No multidisciplinary group
The situation is disheartening and sad…
ALS Support Group
Information Dissemination
Since then,…
In terms of research output about ALS
For Other Doctors/Residents/Future Neurologists/Neurophysiologists
- Lay Forums and celebrate ALS awareness Day
For Other Doctors/Residents/Future Neurologists/Neurophysiologists
- Power EMG
- Include ALS lectures in National Conventions
For Other Doctors/Residents/Future Neurologists/Neurophysiologists
- National ALS registry
- Collaboration for research
- Guidance on including riluzole in our drug formulary
- Inclusion in clinical trials
Thank you!
